OUR GOAL FOR OUR BLACK PEARLS
9 rare disease societies that come to the same goal through different lives come together; We decided to be the only sound. We started our activities as Rare Diseases Network as of 21.12.2018.
Our goal is "Our Black Pearls"
- Ensuring that it is visible in the society,
- Contributing to health economics by providing solutions to lawmakers,
- To increase the quality of life and durations.
ANNOUNCEMENTS
