RARE DİSEASES PATİENT AND PATİENT RELATİVES NEEDS ANALYSİS WORKSHOP
The Rare Diseases Workshop will be organized on Monday, April 29 with the contribution of the SEPD and the Istanbul Medical Faculty, Medical Pharmacology USA, with the contributions of TUBITAK - TUSSIDE.
Place: Istanbul University Istanbul Medical Faculty, Hulusi Behçet Library Pink Hall
Date: 29 April 2019, Monday
Time: 09.00 - 17.30
This workshop's aim is not a rare disease patient association representatives and associations in Turkey rarely / ultra patients by rare diseases to individuals assessments have to identify the current situation to the needs of caregivers, enhancing the quality of life and times of individuals with rare diseases to enable them to take an active role in community development is the realization of the work.
Workshop quota is limited.
Participation is free.
Once your participation has been approved, you will be notified by the Rare Diseases Network via e-mail.
