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29.12.2020
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30.12.2019
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Nadir Hastalıklar Ağı Buluşma Toplantısı
Tarih: 04.01.2020 - Cumartesi Saat: 10:00-18:00 Yer: Acıbadem Altunizade Hastanesi B4 Konferans Salonu (Altunizade, Yurtcan Sokağı No:1, ...
24.12.2019
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Pahssc and Cystinosis Belgian Model Supports Organ Donation ...
Every 19 minutes, 1 person is faced with a situation that requires organ transplantation (illness / accident) in our country.Transplantation from ...
05.11.2019
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22.07.2019
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22.07.2019
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12.07.2019
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29.06.2019
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23.05.2019
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15.05.2019
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11.05.2019
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05.05.2019
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Rare Diseases Patient and Patient Relatives Needs Analysis ...
The Rare Diseases Workshop will be organized on Monday, April 29 with the contribution of the SEPD and the Istanbul Medical Faculty, Medical Pharmacology USA, ...
29.04.2019
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29.04.2019
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25.03.2019
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14.03.2019
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08.03.2019
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28.02.2019
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Our Goal For Our Black Pearls
9 rare disease societies that come to the same goal through different lives come together; We decided to be the only sound. We started our activities as Rare ...
13.02.2019