FOUNDING MEMBER ASSOCIATIONS

Albinism Association, since 2013, to raise awareness on Albinism, to gain the rights of the individuals and families of albinism, to improve the quality of life, Albinism to perform the necessary work for the diagnosis and treatment of our country in order to realize the work in Turkey and abroad, a non-profit civil society subsidiary.

Since 2005, PKU Family Association is a national and international patient association that aims to facilitate the lives of our children with congenital metabolic disorders and to make them visible and socially and internationally.

The association established by the patients and their relatives in 2008 and lasted for 6 years. The association was founded in 2018 after the Pulmonary Hypertension Association, which was terminated after the dissolution of the financial resources in 2014.

May 2016 The purpose of our association founded in Ankara is; To inform the patients and their relatives of cystinosis and to protect their rights and interests on issues such as economic, social, cultural, legal, vocational, and education.