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MEMBERS

Albinizm Derneği
www.albinizm.org.tr
PKU Aile Derneği
www.pkuaile.com
Pulmoner Hipertansiyon ve Skleroderma Hasta Derneği
www.pahssc.org.tr
Sistinozis Hastaları Derneği
www.sistinder.org
Tay-Sachs and Sandhoff Relief Association
www.instagram.com/taysachsandhoff
Williams Syndrome Association
www.facebook.com/Williams-Syndrome-Turkey-Williams-Sendromu-T%C3%BCrkiye-175037539178035

: nadirhastaliklaragi@gmail.com
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